Communities learn about Alzheimer's disease
by Carol Flaherty
Community... if there is anything that defines Montana as a good place it is the abundance of community, even in places where people have to drive a ways to get to the neighbor's house.
In 2004 Montana PBS and MSU Extension helped bring communities together to learn about Alzheimer's disease and what communities can do to help families of Alzheimer's patients.
In the winter of 2004, when Montana PBS aired the national program called "The Forgetting," the station also worked with the MSU Extension Service to coordinate meetings in 16 counties. Extension Agents in those counties organized community viewings of the program and facilitated discussion groups afterwards. For communities that could not receive Montana PBS, videotapes were sent to them for the viewing.
"There was outstanding response from County Agents on this--the most in any program I have had," said Sandra Bailey, Extension's health and human development specialist (baileys@montana.edu or 406 994-6745). Bailey is also a board member for the Montana Chapter of the Alzheimer's Association, as is Sheridan County Extension Agent Sheila Friedrich.
Chris Seifert, the Montana PBS program's producer, brought advisors into the Montana PBS station to be available for questions from the counties.
"At first I thought that people with Alzheimer's would be better off in big cities, but now I'm thinking that we are darn lucky to be in Montana," Seifert says. "We have long-term community connections, and we found some great resources right here in Montana."
From Montana dogs that are trained in the "Go find Bill game" (an Alzheimer's patient) (www.schuredog.com) to the Life's End Institute in Missoula (www.missoulademonstration.org or 406 728-1613), and simple techniques like creating photo books as memory aides, the show provided a springboard for local discussions that looked for creative solutions to common problems.
Some counties have ongoing support and education groups, but the coordinated effort with Montana PBS served a special need in making people aware of what is available in their communities and of the types of creative approaches that can help families cope with the disease in a loved one.
Bailey said 83 percent of respondents to a follow-up survey said they learned information relevant to them, and 66 percent said they believed the information reduced some of their anxiety associated with the disease. More than 50 percent said the show's examples helped them to feel "less alone as a caregiver" to someone with the disease.
Seifert said she is continuing to make videotaped copies of the program available to those who ask as long as she has copies. In addition, some county Extension Service offices are continuing to provide the video to local groups.
The Montana PBS Web site (www.montanapbs.org) has links to information: the Alzheimer's Association Web site at: http://www.alz.org, the National Institute on Aging at http://www.alzheimers.org, and a companion page to an Alzheimer's e-mail discussion group at http://www.pbs.org/wgbh/pages/frontline/shows/pop/etc/links.html.